CLEFT-Q: detecting differences in outcomes among 2434 patients with varying cleft types

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dc.contributor.authorWong Riff, Karen W. Y.
dc.contributor.authorTsangaris, Elena
dc.contributor.authorForrest, Christopher
dc.contributor.authorGoodacre, Tim
dc.contributor.authorLongmire, Natasha
dc.contributor.authorAllen, Gregory
dc.contributor.authorCourtemanche, Douglas
dc.contributor.authorGoldstein, Jesse
dc.contributor.authorO’Mahony, Aisling
dc.contributor.authorPusic, Andrea
dc.contributor.authorSlator, Rona
dc.contributor.authorSwan, Marc
dc.contributor.authorThoma, Achilleas
dc.contributor.authorVargas, Federico
dc.contributor.authorKlassen, Anne
dc.date.accessioned2020-04-23T19:55:54Z
dc.date.available2020-04-23T19:55:54Z
dc.date.issued2019
dc.description.abstractenglishBackground: Measuring the patient perspective is important in evaluating outcomes of cleft care. Understanding how treatment outcomes vary depending on cleft type may allow for better planning of treatments, setting of expectations, and more accurate benchmarking efforts. The CLEFT-Q is a patientreported outcome measure for patients with cleft lip and/or palate. Methods: The 12 CLEFT-Q scales measuring appearance (i.e., face, nose, nostrils, lips, cleft lip scar, teeth, and jaws), function (i.e., speech), and health-related quality of life (i.e., psychological, school, social, and speech-related distress) were field tested in a cross-sectional study in 30 centers in 12 countries. Patients with cleft lip and/or cleft palate aged 8 to 29 years were recruited from clinical settings. Differences in CLEFT-Q scores by cleft subtypes were evaluated usingone-way analysis of variance or Kruskal-Wallis H tests, with Tukey or Dunn procedure with Bonferroni corrections post hoc analyses, respectively. Scores are presented using radar charts to visualize all outcomes simultaneously. Results: The field test included 2434 patients. Scores on all CLEFT-Q scales varied significantly with cleft subtype. Patients with unilateral or bilateral cleft lip and/or palate scored lower on all appearance scales compared with patients with cleft palate or unilateral incomplete cleft lip. Scores on the speech function and speech-related distress scales decreased with each progressive group in the Veau classification. Patients with complete bilateral cleft lip and palate scored lowest on the social, school, and psychological scales. Conclusions: Patient-reported outcomes measured with the CLEFT-Q vary significantly with cleft type. Visualizing multiple outcomes simultaneously with radar charts allows for an understanding of a patient’s overall status in a single graph.eng
dc.format.mimetypeapplication/pdf
dc.identifier.doihttps://doi.org/10.1097/PRS.0000000000005723
dc.identifier.instnameinstname:Universidad El Bosquespa
dc.identifier.issn0032-1052
dc.identifier.reponamereponame:Repositorio Institucional Universidad El Bosquespa
dc.identifier.repourlrepourl:https://repositorio.unbosque.edu.co
dc.identifier.urihttps://hdl.handle.net/20.500.12495/2339
dc.language.isoeng
dc.publisherAmerican Society of Plastic Surgeonsspa
dc.publisher.journalPlastic and Reconstructive Surgeryspa
dc.relation.ispartofseriesPlastic and Reconstructive Surgery, 0032-1052, Vol 144, Num 1, 2019, pag 78e-88espa
dc.relation.urihttps://insights.ovid.com/crossref?an=00006534-201907000-00038
dc.rights.accessrightsinfo:eu-repo/semantics/openAccess
dc.rights.accessrightshttps://purl.org/coar/access_right/c_abf355
dc.rights.creativecommons2019
dc.rights.localAcceso cerradospa
dc.subject.decsFisura del paladarspa
dc.subject.decsAnomalías maxilomandibularesspa
dc.subject.decsEstudio de evaluaciónspa
dc.titleCLEFT-Q: detecting differences in outcomes among 2434 patients with varying cleft typesspa
dc.title.translatedCLEFT-Q: detecting differences in outcomes among 2434 patients with varying cleft types
dc.typearticlespa
dc.type.hasversioninfo:eu-repo/semantics/publishedVersion
dc.type.localartículospa

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