Enfoques de investigación participativa basadas en la comunidad aplicadas a los cuidados paliativos: revisión de la literatura

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dc.contributor.advisorVargas Escobar, Lina María
dc.contributor.authorRodríguez Camargo, David Esteban
dc.contributor.authorFigueroa Pulido, Kimberly Tatiana
dc.contributor.authorRozo Baena, Leidy Yuliana
dc.contributor.authorTorres Guerrero, Daniela
dc.contributor.authorRodríguez Palacios, Alex Giordanny
dc.contributor.orcidRodríguez Camargo, David Esteban [0009-0007-9626-8026]
dc.contributor.orcidRozo Baena, Leidy Yuliana [0009-0007-7813-9984]
dc.contributor.orcidTorres Guerrero, Daniela [0009-0007-0778-1603]
dc.contributor.orcidFigueroa Pulido, Kimberly Tatiana [0009-0009-7018-0522]
dc.contributor.orcidRodriguez Palacios, Alex Giordanny [0009-0008-9066-8819]
dc.date.accessioned2024-11-21T20:31:57Z
dc.date.available2024-11-21T20:31:57Z
dc.date.issued2024-11
dc.description.abstractLos cuidados paliativos se han convertido en un aspecto crucial de la atención en salud centrándose no sólo en aliviar los síntomas sino también en mejorar la calidad de vida de los pacientes con condiciones terminales. El trabajo con la comunidad es importante debido a que permite conocer y abordar los puntos de vista de las personas involucradas y de esta manera plantear estrategias que contribuyan a mejorar el desempeño, reducir costos y promover el acceso a los cuidados paliativos. El objetivo del presente trabajo es explorar en la literatura publicada de los últimos 10 años, los enfoques y experiencias de investigación participativa basadas en la comunidad en el ámbito de cuidados paliativos. Se revisaron las bases de datos: EBSCO Host, Science Direct, Embase, PubMed, ProQuest One Academic y Google Scholar; con los siguientes descriptores de búsqueda: (“Palliative Therapy” OR “palliative care” AND “Community-Based Participatory Research”), (“Terapia paliativa” OR “cuidado paliativo” AND “Investigación basada en la comunidad”). Se obtuvieron un total de 191 artículos, de los cuales se seleccionaron 17 para la revisión. Los resultados de la revisión muestran que la búsqueda sistemática identificó 191 artículos, de los cuales se incluyeron 17 que abarcan una década de estudios (2013-2023) en seis países. Los estudios, mayormente cualitativos (13), se centraron en la investigación participativa y los cuidados paliativos, abarcando poblaciones rurales, urbanas, personas mayores, pacientes con cáncer y comunidades indígenas. Donde la triangulación de datos a través de métodos como el mapeo social, entrevistas, encuestas y ensayos clínicos aleatorizados reforzó la validez de los hallazgos, demostrando un enfoque riguroso y adaptado a las necesidades de la población. En la última década, ha crecido el uso de metodologías de investigación que destacan la importancia de la inclusión comunitaria, especialmente en el ámbito de la salud. La investigación participativa basada en la comunidad (CBPR) ha superado a los enfoques tradicionales por su capacidad de involucrar a las comunidades en todas las fases del estudio, lo que asegura que los resultados sean más pertinentes y adaptados a las necesidades locales. A diferencia de metodologías convencionales, que imponen agendas externas, la CBPR mejora la confianza, la colaboración y la sostenibilidad de los resultados. Se concluye que involucrar activamente a las comunidades en el diseño y ejecución de intervenciones en cuidados paliativos es esencial para lograr cuidados más efectivos, equitativos y accesibles. La colaboración cercana y el respeto por la diversidad cultural permiten una mejor comprensión de las necesidades, aumentando la satisfacción y el acceso a los cuidados. Este enfoque también identifica barreras específicas, generando beneficios tanto para la comunidad como para los investigadores.
dc.description.abstractenglishPalliative care has become a crucial aspect of health care, focusing not only on relieving symptoms but also on improving the quality of life of patients with terminal conditions. Working with the community is important because it allows us to understand and address the points of view of the people involved. In this way, it is possible to propose strategies that contribute to improving performance, reducing costs, and promoting access to palliative care. This paper aims to explore community-based participatory research approaches and experiences in palliative care in the published literature of the last 10 years. EBSCO Host, ScienceDirect, Embase, PubMed, ProQuest One Academic, and Google Scholar databases were searched, with the following search descriptors: (“Palliative Therapy” OR “palliative care” AND “Community-Based Participatory Research”), (“Palliative Therapy” OR “palliative care” AND “Community-Based Research”). A total of 191 articles were found, of which 17 were selected for review. The review results show that the systematic search identified 191 articles, of which 17 were included, covering a decade of studies (2013-2023) in six countries. The studies, mostly qualitative (13), focused on participatory research and palliative care and included rural and urban populations, the elderly, cancer patients, and indigenous communities. Triangulation of data through methods such as social mapping, interviews, surveys, and randomized clinical trials strengthened the validity of the findings and demonstrated a rigorous and tailored approach to the population's needs. Over the past decade, there has been an increase in the use of research methods that emphasize the importance of community involvement, particularly in the area of health. Community-based participatory research (CBPR) has surpassed traditional approaches in its ability to involve communities in all study phases, ensuring that results are more relevant and tailored to local needs. Unlike traditional methods that impose external agendas, CBPR builds trust, collaboration, and sustainability of results. In conclusion, communities' active involvement in the design and implementation of palliative care interventions is essential to achieving more effective, equitable, and accessible care. Close collaboration and respect for cultural diversity enable a better understanding of needs, increasing satisfaction and access to care. This approach also identifies specific barriers and provides benefits for both the community and researchers.
dc.description.degreelevelPregradospa
dc.description.degreenameEnfermerospa
dc.format.mimetypeapplication/pdf
dc.identifier.instnameinstname:Universidad El Bosquespa
dc.identifier.reponamereponame:Repositorio Institucional Universidad El Bosquespa
dc.identifier.repourlrepourl:https://repositorio.unbosque.edu.co
dc.identifier.urihttps://hdl.handle.net/20.500.12495/13320
dc.language.isoes
dc.publisher.facultyFacultad de Enfermeríaspa
dc.publisher.grantorUniversidad El Bosquespa
dc.publisher.programEnfermeríaspa
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dc.rightsAtribución-NoComercial-CompartirIgual 4.0 Internacional
dc.rights.accessrightsinfo:eu-repo/semantics/openAccess
dc.rights.accessrightshttps://purl.org/coar/access_right/c_abf2
dc.rights.localAcceso abiertospa
dc.rights.urihttp://creativecommons.org/licenses/by-nc-sa/4.0/
dc.subjectCuidados Paliativos
dc.subjectTerapia paliativa
dc.subjectInvestigación participativa basada en la comunidad
dc.subject.keywordsPalliative care
dc.subject.keywordsPalliative therapy
dc.subject.keywordsCommunity based participatory research
dc.subject.nlmWY 100
dc.titleEnfoques de investigación participativa basadas en la comunidad aplicadas a los cuidados paliativos: revisión de la literatura
dc.title.translatedCommunity-based participatory research approaches applied to palliative care: a review of the literature
dc.type.coarhttps://purl.org/coar/resource_type/c_7a1f
dc.type.coarversionhttps://purl.org/coar/version/c_ab4af688f83e57aa
dc.type.driverinfo:eu-repo/semantics/bachelorThesis
dc.type.hasversioninfo:eu-repo/semantics/acceptedVersion
dc.type.localTesis/Trabajo de grado - Monografía - Pregradospa

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