Dividuación e incomposibilidad de principios éticos en la autogestión del riesgo genotípico
dc.contributor.author | Clavijo-Montoya, Hernando Augusto | |
dc.contributor.orcid | Clavijo-Montoya, Hernando Augusto [0000-0001-8991-9432] | |
dc.date.accessioned | 2021-05-06T13:49:12Z | |
dc.date.available | 2021-05-06T13:49:12Z | |
dc.date.issued | 2020-12-11 | |
dc.description.abstract | Propósito/Contexto. Hoy en día, con la posibilidad de detectar la predisposición genética de un número cada vez mayor de enfermedades, incluidos los ampliamente promocionados a nivel mundial y conocidos como “test genéticos del hogar”, la genómica comienza a plantear conflictividades que no se consideraban años atrás. Metodología/Enfoque. En este artículo, tales conflictividades son estudiadas con una metodología cualitativa desde la ética de la convergencia de Ricardo Maliandi, en el contexto del concepto de dividuo propuesto por Gilles Deleuze y aplicado a estos avances científicos. Resultados/Hallazgos. Las personas se enfrentan a la nueva realidad de tener marcadores genéticos asociados con riesgos de enfermedades cuya prevención o tratamiento son aún limitados. De esta manera, el proceso de dividuación, a nivel genotípico, aumenta la conflictividad por el surgimiento de nuevas formas de incomposibilidad de óptimos entre los principios éticos. Discusión/Conclusiones/Contribuciones. Con la disponibilidad de estos avances tecnocientíficos, las personas no solamente deben preocuparse por su fenotipo; ahora deben comenzar a autogestionar su genotipo en un contexto de incertidumbre sobre su salud. Resulta necesario considerar el papel de las políticas sanitarias frente a estos desafíos; de sus orientaciones u omisiones dependerán las decisiones de las organizaciones y de la sociedad en general. | spa |
dc.description.abstractenglish | Purpose/Context. Today, with the possibility of detecting our genetic predisposition to an increasing number of diseases, including the widely promoted worldwide “at-home genetic testing,” genomics has begun to raise conflicts that were not considered years ago. Method/Approach. This article studies such conflicts from Ricardo Maliandi’s convergent ethics using a qualitative method, according to Gilles Deleuze’ concept of dividual applied to these scientific advances. Results/Findings. People are facing the new reality of having genetic markers associated with risks of diseases whose prevention or treatment is still limited. Then, the dividuation process at the genotypic level increases conflict due to the emergence of new forms of optimal incompossibility between ethical principles. Discussion/Conclusions/Contributions. With these available techno-scientific advances, individuals should not only worry about their phenotype but also about self-managing their genotype amidst the uncertainty of their health. It is necessary to consider the role of health policies in these challenges; the decisions of organizations and society will depend on their guidance or omissions. | eng |
dc.format.mimetype | application/pdf | |
dc.identifier.doi | https://doi.org/10.18270/rcb.v15i2.3343 | |
dc.identifier.instname | instname:Universidad El Bosque | spa |
dc.identifier.issn | ISSN-L 1900-6896, ISSN-E 2590-9452 | |
dc.identifier.reponame | reponame:Repositorio Institucional Universidad El Bosque | spa |
dc.identifier.repourl | repourl:https://repositorio.unbosque.edu.co | |
dc.identifier.uri | https://hdl.handle.net/20.500.12495/5821 | |
dc.language.iso | spa | |
dc.relation.ispartofseries | Revista Colombiana de Bioética, ISSN-L 1900-6896, ISSN-E 2590-9452, Vol 15, No 2, 2020. | spa |
dc.relation.references | Christensen, Jen. 2017. “At-home genetic test for 10 diseases gets first FDA appro-val.” CNN Health, April 6, 2017. https://edition.cnn.com/2017/04/06/heal-th/23andme-fda-approval-genetic-disease-test-bn/index.html | spa |
dc.relation.references | Deleuze, Gilles. 1999. Conversaciones. Pre-Textos. | spa |
dc.relation.references | Fiedorowicz, Jess G., James A. Mills, Adam Ruggle, Douglas Langbehn, y Jane S. Paulsen. 2011. “Suicidal Behavior in Prodromal Huntington Disease.” Neurode-generative Diseases 8, no. 6: 483-490. https://doi.org/10.1159/000327754 | spa |
dc.relation.references | Food and Drug Administration. (2017). FDA allows marketing of first direct-to-consu-mer tests that provide genetic risk information for certain conditions.https://www.fda.gov/NewsEvents/Newsroom/PressAnnouncements/ucm551185.htm | spa |
dc.relation.references | Food and Drug Administration. (2019). Direct-to-Consumer Tests.https://www.fda.gov/medical-devices/vitro-diagnostics/direct-consumer-tests | spa |
dc.relation.references | Facing Our Risk of Cancer Empowered. s.f. “FORCE.” https://www.facingourrisk.org/index.php | spa |
dc.relation.references | González Valenzuela, Juliana. 2017. El cuerpo del alma y el alma del cuerpo.Ciudad de México: FCE. | spa |
dc.relation.references | Hottois, Gilbert. 2007. ¿Qué es la bioética? Bogotá: Universidad El Bosque. | spa |
dc.relation.references | Lemke, Thomas. 2004. “Disposition and determinism genetic diagnosis in risk society.” The Sociological Review 52, no. 4: 550-566. https://doi.org/10.1111%-2Fj.1467-954X.2004.00495.x | spa |
dc.relation.references | Lemke, Thomas. 2005. “From eugenics to the government of genetic risks.” En Genetic Governance: Health, Risk and Ethics in the Biotech Era, editado por Robin Bunton y Alan Petersen, 95-105. New York: Routledge. https://www.thomas-lemkeweb.de/engl.%20texte/From%20Eugenics.pdf | spa |
dc.relation.references | Maliandi, Ricardo. 2010. Ética convergente. Fenomenología de la conflictividad. Buenos Aires: Ediciones Las Cuarenta. | spa |
dc.relation.references | Maliandi, Ricardo, y Oscar Thüer. 2008. Teoría y praxis de los principios bioéticos. Remedios de Escalada: Ediciones de la Universidad Nacional de Lanús. | spa |
dc.relation.references | Mukherjee, Siddartha. 2017. El gen. Barcelona: Editorial Debate. | spa |
dc.relation.references | National Institutes of Health. (s.f.). “What is direct-to-consumer genetic testing?” MedlinePlus. https://medlineplus.gov/genetics/understanding/dtcgenetictesting/directtoconsumer/ | spa |
dc.relation.references | Rose, Nikolas. 2012. Políticas de la vida. Biomedicina, poder y subjetividad en el siglo XXI. La Plata: UNIPE Editorial Universitaria. | spa |
dc.relation.references | Erkelens, A., Lineke Derks, Aisha S. Sie, L. Egbers, G. Woldringh, Judith B. Prins, Peggy Manders, y Nicoline Hoogerbrugge. 2017. “Lifestyle Risk Factors for Breast Cancer in BRCA1/2-Mutation Carriers Around Childbearing Age.” Jour-nal of Genetic Counseling 26, no. 4: 785–791. https://doi.org/10.1007/s10897-016-0049-4 | spa |
dc.relation.references | Winchester. E. y Shirley V. Hodgson. 2006. “Psychosocial and ethical issues relating to genetic testing for BRCA1 and BRCA2 breast cancer susceptibility genes.” Women’s Health 2, no. 3: 357–373. https://doi.org/10.2217/17455057.2.3.357 | spa |
dc.relation.uri | https://revistas.unbosque.edu.co/index.php/RCB/article/view/3343 | |
dc.rights | Atribución-NoComercial-CompartirIgual 4.0 Internacional | * |
dc.rights.accessrights | https://purl.org/coar/access_right/c_abf2 | |
dc.rights.accessrights | info:eu-repo/semantics/openAccess | |
dc.rights.local | Acceso abierto | spa |
dc.rights.uri | https://creativecommons.org/licenses/by-nc-sa/4.0/ | * |
dc.subject | Prepaciente | spa |
dc.subject | Previviente | spa |
dc.subject | Dividuo | spa |
dc.subject | Autogestión del genotipo | spa |
dc.subject | Test genéticos del hogar | spa |
dc.subject | Test directos al consumidor | spa |
dc.subject | Ética de la conflictividad | spa |
dc.subject | Ética de la convergencia | spa |
dc.subject.keywords | Prepatient | spa |
dc.subject.keywords | Previvor | spa |
dc.subject.keywords | Dividual | spa |
dc.subject.keywords | Genotype self-management | spa |
dc.subject.keywords | At-home genetic testing | spa |
dc.subject.keywords | Direct-to-consumer tests | spa |
dc.subject.keywords | Ethics of conflict | spa |
dc.subject.keywords | Convergent ethics | spa |
dc.title | Dividuación e incomposibilidad de principios éticos en la autogestión del riesgo genotípico | spa |
dc.title.translated | Dividuation and Incompossibility of Ethical Principles in Genotypic Risk Self-management | spa |
dc.type.coar | https://purl.org/coar/resource_type/c_6501 | |
dc.type.coarversion | https://purl.org/coar/version/c_970fb48d4fbd8a85 | |
dc.type.driver | info:eu-repo/semantics/article | |
dc.type.hasversion | info:eu-repo/semantics/publishedVersion | |
dc.type.local | Artículo de revista | spa |